Showing posts with label disability in arts. Show all posts
Showing posts with label disability in arts. Show all posts

Wednesday, October 14, 2015

Looking Good: Beauty Standards & Disability

Who deserves to be visualized in media when discussing disability? It's well known that attractive people are treated better by others.  And when you think of the term 'model,' you think of beautiful men and women. 

While contemplating the visuals for my last two novels, I spent days searching stock image licensing companies to find imagery that would represent the two main characters in both Every Time I Think of You and its sequel Message of Love.

And I failed.

I failed because I didn't settle for what was available, because the images for rent did not include young men who resemble the main characters, in particular, Everett Forrester.  Stock images of wheelchair users, are kind of stupid, as this snarky yet accurate AutoStraddle listicle shows.

British trainer Jack Ayers
Most stock image companies portray disabled people -specifically wheelchair users- as either frail, in a hospital, alone, or conversely, as super athletic.

An exception is PhotoAbility, which has a more diverse array of images, but none of their images include two men together that could even slightly be implied as gay.

Also, as I've written before, I did not want to specifically 'brand' the books as disabled-inclusive, or specific. I never shied away from mentioning it as part of the story. I simply thought that the nature field guide look of the two covers was more metaphoric, while referencing an actual part of the story, Reid's love and study of nature.

Sunday, November 16, 2014

American Horror Story's Mat Fraser is not your 'inspiration porn'

Mat Fraser, one of the many disabled actors in American Horror Story: Freak Show, does not want to "inspire" you. 
I first saw Mat perform as a guest drummer for Coldplay at the London Paralympics closing ceremonies (I watched the YouTube simulcast; video embed's at the bottom of this post). 

It wasn't a great concert because he performed, or that it was the Paralympics, but that it was a great show, even better than the London Olympics ceremonies. Sure, it had a smaller budget and fewer pyrotechnical displays. But they featured Sir Ian McKellen and a dazzling array of performers in a much more deftly produced spectacle. 

Sunday, October 13, 2013

My Left Foot

Last week I almost became permanently disabled, and it wasn't an 'inspirational' moment; nope, actually, it was a pain in the ...foot.

It's all inextricably tied in with life, work and my creative writing, so bear with me if I get a bit tangled up.
On October 5, after seeing Lady Bunny's hilarious show, and while cycling to The SF Eagle for a photo shoot of local drag diva Moni Stat's 30th birthday party, I was riding through a notoriously dangerous intersection in south of Market, 9th and Harrison streets.

Monday, July 29, 2013

Iron Man, too

It's rather bold for actor Blair Underwood to portray a white gay man.

Wait; that was Raymond Burr.

Burr, who lived a discreet life with a long-term male partner, was perhaps best known for his 1960-70s TV shows Perry Mason, and Ironside, about a San Francisco police chief paralyzed after a sniper shoots him. Determined to continue striving for justice, he solves crimes with the help of a driver and assistant.

Underwood will play the lead in a revamp of the original Ironside. The updated version is set in New York City. If the show were accurate in its portrayal of daily life, it would include the numerous transport difficulties faced by disabled residents. But since it's filmed in Los Angeles, that will probably be overlooked.  New York City's record on accessibility, even decades after the Americans with Disabilities Act, is, well, dismal.

Some in the disabled community feel that if there isn't an able-bodied back story to be visualized, the character should be played by an actor who actually is disabled.

Wednesday, May 15, 2013

That's Entertainment

My post on arts and entertainment with a disability focus includes a dance film, naughty comics, art exhibits and the alleged "happiest place on earth."

Ballroomies
Musical Chairs
Ballroom dancing, injury and trans fabulousness fill the new movie Musical Chairs with heart, spirit and a sense of love. Susan Siedelman (director of Desperately Seeking Susan, Madonna's breakout film) brings together a diverse cast for an upbeat, sweet-natured story of a dancer whose post-injury recovery includes being coaxed into wheelchair ballroom dancing by a social dancing instructor. A group of other paraplegics join in, building up to some nice dancing and light comedy.

Sunday, March 17, 2013

AXIS-tence

A wheelchair-using BART commuter in the early 1970s
My weekend was full of East Bay arts, all of which ended up being, in some ways, connected. For those of you not in the San Francisco area, East Bay is the Brooklyn, Queens, and Long Island of the Bay Area.

Some people in San Francisco may dismiss the East Bay, make "bridge and tunnel" jokes. I ride BART a lot, and while a few unpleasant events have happened to me, none of them were serious. The few very violent events - shootings by criminals and BART police have been covered by other media quite extensively. But personally, I can honestly say that it's a pretty amazingly efficient commuting experience.

One of the things I recently learned while researching the sequel to Every Time I Think of You, a novel that includes a disabled gay main character, is that Bay Area Rapid Transit was one of the first mass transit systems that made platforms and elevators and train cars accessible to wheelchair users.

Saturday, November 24, 2012

Reel to Wheel 3


Rust and Bone

With five new films about people with disabilities getting major attention, critical raves, and box office success, it seems I'm distantly part of a new trend in the arts. What's the new surprise for the mostly non-disabled media? Disabled people have sex!

I've examined the depiction of disabled characters in films before, but most of them were low-budget horror flicks and weepy melodramas. A few included disabled characters as part of an ensemble, while others focused on disability as a main theme (see 'Reel to Wheel 2'). TV characters have had their own representations and misrepresentations, while actual disabled artists have expanded boundaries (see 'Arts, Access and Artie') in fictional and reality show settings (see my 'Push Girls' feature in the Bay Area Reporter).

But the new slew of films take on such diverse perspectives that it's expanded the notion of how disabled people can (or should?) be depicted beyond any prior notions.

Saturday, September 15, 2012

Reel to Wheel 2

While working on the sequel to Every Time I Think of You, I decided to specifically watch movies that prominently feature characters who are wheelchair users or are disabled. I wanted to see how depictions are either accurate or, more often, preposterous or melodramatic. Here's a list:


Abominable (2006): Rear Window meets Sasquatch. Preston Rogers (Matt McCoy) is forced by his doctor, apparently, and his slightly abusive caregiver to return to his remote cabin in the mountains, after a paralyzing rock-climbing accident that killed his wife. Along with the amusing low-grade horror devices, a number of improbabilities plague this low-budget thriller. What doctor would recommend making a man return to his completely inaccessible home, with two flights of stairs? Rogers is portrayed as a trapped victim forced to become a hero and save the dwindling cast of female nearby cabin-renters.

A few amusing B-horror actor cameos, plus a lot of gore, don't excuse the completely implausible story that the notoriously reclusive (albeit fictional) Bigfoot would go on a murderous rampage. At least Rogers does eventually become a hero. (See interview with the writer-director.)

--


Planta 4
(2003; also called 4th Floor, and Entre Amigos, not to be confused with the cheesy American thriller The 4th Floor): About a group of rambunctious kids dealing with cancer, and its resultant leg amputations, the film is set entirely in a Spanish hospital, where the adorable clan get into various mishaps and misadventures. There's a bit of tragedy, but more, an overriding sense of goodhearted spirit to Antonio Mercero's film, which is based on the experiences of screenwriter Albert Espinosa's stage play, called 'The Baldies' (the actors' shaved heads, while representing their recovery from chemotherapy, only make them cuter, especially Juan Jose Ballesta).

Sunday, February 12, 2012

Time the Avenger


Once again, like my book, I'm feeling a bit overshadowed and sidetracked. Celebrity deaths continue at a strangely hastened pace, and I focus on one while others focus on the more famous and inevitable.

Ben Gazzara, one of America's most understated yet accomplished actors, died last week. As Playbill's obituary writes, he was a "Darkly handsome, with a brooding, manly persona, the New York-born, Italian-American actor." That, and his talent, made him one of my favorites.

As a teenage theatre major at Kent State University, I had the daunting task of playing Brick in a student production of Tennessee Williams' Cat on a Hot Tin Roof. Having seen the Paul Newman film version, I thought the role a sexy, and sexually ambivalent, character. Lacking DVDs and such in those days, I found the Theatre World annual photos books of each year's shows, and found a page of photos of Ben Gazzara in the role he originated.

I'd since become fascinated by the annuals, edited for decades by John Willis, who seemed to have made sure any production still featuring male shirtless actors was included.

Although mine was an unstaged class scene between Brick and Maggie, and the probability of a nineteen-year-old portraying a manic-depressive alcoholic was slightly improbable, I took the assignment seriously.

I foraged at a vintage clothing store to find a pair of silk pajamas for the role (I still have them!). I forget who found the crutch for me. But I'll never forget the embarrassing moment when, in a fit of characteristic rage where Brick flings his crutch at Maggie, instead, in front of the entire faculty and graduate students, my crutch went sliding offstage and into the orchestra pit.

Some odd ad-libbing took place. I hobbled around with the character's limp, glass in hand, while someone retrieved the crutch and snuck it onstage.

The blog Sheila Variations has an extended excerpt of a scene from Cat on a Hot Tin Roof. Here's an interesting quote Maggie has about Brick:
Of course, you always had that detached quality as if you were playing a game without much concern over whether you won or lost, and now that you’ve lost the game, not lost but just quit playing, you have that rare sort of charm that usually only happens in very old or hopelessly sick people, the charm of the defeated. — You look so cool, so cool, so enviably cool.

Gazzara may have never had to deal with such a forced gaffe-induced improv in his career, but he was also known for the loose, semi-improvisational films he later made with John Cassavetes.

While my career path thankfully merged toward other more sensible aspects of the arts, when a smartly-written blog post started making the rounds, it struck a chord for me and other colleagues.

Tom Vanderwell's Wayfarer blog features an excellent essay on how his theatre training led to his successes in life, even though he did not become a theatre professional. Vanderwell's points are great and full of truth.

I feel a closer connection to creativity skills, not just social and business situations he cites. For my fiction work, a sense of drama, character development, and especially dialogue, are probably the best skills handed over from performing. Being trained to learn a sense of pacing in great dialogue like Williams' and that of other playwrights, hopefully had an influence.

But closer to Vanderwell's points; like he did, I learned all aspects of getting a project done. And if it doesn't work out as I'd hoped, I learn from it and move on to the next project.

Did I convincingly portray Brick, a young man caught in denial, an alcohol-induced injury (also a metaphor for his psychological damage) and a repressed love for his male friend? In all probability, I was adequate, despite the crutch gaffe. But I moved on.

Ben Gazzara, who created the role, moved from theatre to film, had a period of terrible depression and mental strife, but had a fascinating resurgence in popularity with choice cameos later in his life.

Because for ten years after my theatre training and work, I switched to dance, and then wrestled as an adult for 14 years, I do have a personal understanding of bodily injury. While it's nothing in comparison to the fictional sports accidents in PINS and Every Time I Think of You, hopefully, my own smaller experience led to a sympathetic depiction in my books.


It's difficult, however, to be sympathetic about the deaths of artists like Amy Winehouse and Whitney Houston, who had everything and wasted it with drug and alcohol addiction. Their handlers, friends and family seem more like enabling sycophants, more concerned with money and associative fame. That's the tragedy.

I'm more touched to see a person who defied obstacles and lived a full life, like skier Jill Kinmont Boothe, who also died just recently.

Paralyzed in a skiing accident only days before she was featured on the cover of Sports Illustrated, Boothe's biography The Other Side of the Mountain became a pair of films in the 1970s. New Mobility reposted a recent interview/feature about Boothe.

Boothe died at 75 after a lifetime of providing inspiration for disabled people around the world. Gazzara died at 81, after a lifetime of accomplishments, which included overcoming his problems, not succumbing to them.

Is it insensitive to compare? Is it considered more proper to shed a tear tonight while watching the Grammy Awards, whose scripts have no doubt been frantically changed to accommodate the morbidly well-timed demise of one of its biggest winners? Will celebrities grow tired of Tweeting their vapid sympathies, perhaps after several drinks at the lavish party to be thrown by Whitney Houston's former producer, Clive Davis, at the very same hotel where she died?

Like a ticking Big Ben clock, Time the Avenger moves on, whether we success or not, whether we die tragically or quietly, too soon or late in life. Will we be an inspiration, or a cautionary tale?

Saturday, January 14, 2012

Arts, Access & Artie

I just noticed that December 3, 2011, the day Every Time I Think of You was published, was also the same day that President Barack Obama proclaimed International Day of Persons With Disabilities. How cool is that?

This was one of several interesting websites and news articles I discovered while working on some outreach for the book. I'm a strong believer in micro-marketing; that is, finding specific communities who would be interested in my work. It's not easy. A disability publication might not address LGBT issues. A gay publication may be uninformed about disability. For example, the Mayo Clinic released a trailer specific to sexuality issues for people with spinal cord injuries, which is great, but there's apparently no inclusion of LGBT people.

So, I keep looking for connections. Here's an article about a photographer who takes photo portraits of the disabled and poor in the Philadelphia area (Spoiler: Philly is included in a few chapters in my book).

Another Philly-specific blog I found is Rob Quinn's PhillyACCESS, which combines topics in media, sports and disability. I'm still trying to find a direct email address for his various sites and Facebook pages. I hope he'll give my book a look.

The inspiring and often hilarious Zach Anner had his new show Rolling with Zach air on Oprah Winfrey's faltering OWN Network. I'd consider getting cable just to see his show. Not only is he more daring than most people of any ability; I'm fascinated by seeing how he overcomes literal obstacles while traveling.

But the biggest issue of the month in arts and disability is the controversy over New Mobility magazine featuring actor Kevin McHale as Glee's wheelchair singing Artie. McHale is not disabled, but plays the undisputed most famous disabled fictional character on TV. Disabled actors and viewers are split on their opinions. (New Mobility's web server was down as of this post. Hopefully, it'll be up soon. Here's their Facebook page.)

Oh, and here's a clip of Zach's show:

Saturday, November 5, 2011

Blurbalicious: Ray Aguilera


Every Time I Think of You captures the joy of finding love for the first time, with all the sweetness, comedy and tragedy that experience inevitably entails. And it does so with the audacity and brutal honesty to admit that yes, even the broken and imperfect among us deserve to experience everything that life has to offer. Kudos to Provenzano for daring to show that disability and sexuality aren’t mutually exclusive, and that crips can be just as good in bed (or elsewhere) as their non-disabled counterparts.”

- Ray Aguilera, former editor of Bent Voices

One of the important aspects of Every Time I Think of You is a sense of authenticity. The work has to ring true with the narrative about disability. One of the first resources I looked up was the website Bent Voices.


Although no longer active, its archive provided fascinating and diverse perspectives from many gay male disabled writers, both professional and amateur. I sought all kinds of experiences, and soaked them in without appropriating others' experiences. I read the anthology Queer Crips to figure what sort of story hadn't yet been told.

As a non-disabled person, I kept the narrative in the perspective of a young gay man whose boyfriend-lover-whatever becomes disabled. To write in the first-person tense from a disabled perspective would have been too hokey and untrue. While it's certainly fine to write fiction about the lives of people whom we are not, there are certain stories where it would not be appropriate, unless the writing is good enough.

So I was pleased to learn that Ray, one of Bent Voices' writer/editors, was not only local, but a previous contributor to the Bay Area Reporter's news section, and the subject of a recent feature article.

Ray kindly read the book, gave it a sort of 'seal of approval,' and is now a writer-photographer contributor at my dual editor job with BARtab. The guy knows his cocktails!

Tuesday, October 4, 2011

A Heady Brew



So, this week in the Bay Area Reporter, my feature about UK choreographer Mark Brew setting a new piece on AXIS Dance company was published. I took another perusal of some online videos. Above is a montage of a few previously created AXIS dances, and Mark's work.

His "Nocturne" male-female duet is pretty amazing. I see it as a metaphor for romance or sex, since there's a bed. It kind of asks the question that people ask disabled people, and which I explore (perhaps a little too fully) in my book: "What do you do in bed?"

Well, Brew made a dance in and out of a bed. I'll have to ask him if his dance is that literal, but I doubt it.

I have to say, for the first time in years, I was a bit daunted to interview dancers Rodney Bell and Shonserée Giles; not because they'd been on TV. Duh. Just because they're pretty amazing dancers.

It was easier to talk with director Judith Smith about the production aspect, and to Brew about the abstract of choreography. But with the dancers, I basically was talking a lot between questions, while in my mind, I was thinking, "Wow. You're cool." Even though I'd danced for years, I still get a bit starstruck.



UPDATE: the opening night concert really amazing. As a former dancer, I can be a bit choosy about modern dance choreography. But the innovations the works undertook occasionally left me gasping. the daring moves that were accomplished, gymnastic tumbling on and off wheelchairs, and, in the case of Brew's work, a bathtub, table and easy chair, evoked a variety of dramatic inter-personal tensions. Dances by company member Sebastian Grubb, New Yorker David Dorffman, and Brew's commissioned new work were simply fascinating.

The audience, which included about 30 people in wheelchairs in the front non-seating area, really enjoyed it. At the reception afterwards, I got to chat more with the affable Brew and other company members and patrons. A great night!

Thursday, September 15, 2011

See Me, Read Me


Here's a new book that tackles a different disability; blindness.

Dorothy's Closet has an interview with author Belo Miguel Cipriani, whose book Blind: A Memoir tells of his harrowing experience in being violently attacked, and his recovery, while becoming blind.

I struggled with the idea of recovery from disabling injuries in my own book. Is the reader supposed to anticipate or hope for a character's full recovery? Is his love interest supposed to? should anyone?

I was quite amused by the Cipriani's response to a reader:

"A guy approached me at a bar and told me that my book had left him unfulfilled; it didn't feel like a good ending to him because I did not get my vision back. I mentioned to him that my book is a memoir and that not everyone in life gets justice. The man continued to tell me he had hoped for a happy ending – to which I replied, 'You should go to a massage parlor for that.'”

Check out Dorothy's Closet for more LGBT books reviews.

Saturday, August 6, 2011

Wheel to Reel


Huh.

Director Michael Akers and writer Sandon Berg are completing a film called Morgan, about a gay bartender who becomes paraplegic after a cycling accident.

Here's an article about some test screenings they did in Philadelphia.


Here's the film website.


I can't say I'm not a tad jealous. Here I am still making final corrections on my as-yet-unpublished book, my screenplay for PINS lays dormant and un-produced, and they're wrapping what may be a groundbreaking feature film.

No, I should be happy that this issue is part of a new visibility trend for LGBT people with disabilities. It'll be interesting to see how they handle these issues.

Thursday, July 14, 2011

Faux Wheel


Decades ago, Bette Midler performed a section of her wonderful touring stage show as Dolores Lelago. She performed as a character who is a wheelchair user, who also performs campy numbers in a mermaid costume.

Lady Gaga, the master appropriator of pop culture images, provides a vague homage to Bette in one of her concert costumes, performing in a wheelchair as a mermaid; all in black.


Yet, unlike Bette, Gaga's constant sincerity and infrequent admission of her inspirations (Madonna, Bruce Springsteen) leaves a few confused about her inclusion of a wheelchair as a mere prop, not an integral part of her act, as Midler did for years. A few disability rights groups were not pleased.

Here's a little deconstructive analysis from the wonderful Bootleg Betty site. they also posted a great pic with Midler's funny Tweet: "I’m not sure @ ladygaga knows that I’ve performed my mermaid in a wheelchair for millions of people — and many of them are still alive."

Also, from the website Beauty Ability, comments by its wheelchair-using editor Tiffany Carlson offer a different perspective. Gaga has frequently used disability as a character motif in her videos and stage shows. She's even hired differently-abled dancers in some of her stage acts, and calls her wheelchair-using fans her "Little Rolling Monsters."

I imagine Gaga gets to see those fans when they get seated at concerts close to the stage. Who knows?

UPDATE: People at a recent concert threw eggs onstage during Gag's wheelchair number. Wow.

Obviously, there's a clear line between portraying a handicapped person onstage and being a handicapped performer.

I'm wondering about the responses to 'Every Time I Think of You' from wheelchair users. Will gay people think it's not representative of them? Most of the handicapped people I know are nothing at all like my character Everett.

Will straight people ignore or dismiss it as being too gay? Does the fact that the love interest, and not the narrator, becomes a wheelchair user give me some slack from accusations of misrepresenting?

Perhaps if I were to be a fraud like "JT Leroy" or other lying memoir "authors," I should be concerned. But even some circles resent it when a writer creates fiction that is far removed from his/her life, mostly with issue of race and gender. It should be interesting to see the responses.